Saturday, June 1, 2024 11 am-2 p.m.
Hudson River Park- Clinton Cove
(Hudson River Greenway, New York, NY 10019
west side highway btwn 55th and 56th Streets)
Hosted by The Marfan Foundation, the Walk for Victory is a global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers Danlos Syndrome (VEDS), and related conditions communities together. .
Friday, May 17, 2024
REDS4VEDS Day is a global campaign that takes place on the third Friday of May each year to help raise awareness of vascular Ehlers-Danlos Syndrome (vascular EDS).
Please Note: as of April 8th 2024, Our event is officially sold out!!! Incredible!!! We have the best supporters! While we cannot accommodate more seats, we would love for you to be able to still support our event or our scholarship fund. Please consider making a donation in lieu of missing our event this year. As always, Thank you!
Date: April 27, 2024
Time: 7 to 11 pm
Location: Archbishop John Hughes Council 481
1305 86th Street
Brooklyn, NY 11228
Downstairs room
Thursday, February 29, 2024
Rare Disease Day is a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally! vEDS is a rare disease!
First Annual vEDS Scholarship Fundraiser
All proceeds from this event will go toward a Scholarship Fund for young adults whose parents or legal guardian have a confirmed diagnosis of vascular Elhers-Danlos Syndrome (vEDS)
(See our vEDS Scholarship Page for more information)
Friday, May 19, 2023
REDS4VEDS Day is a global campaign that takes place on the third Friday of May each year to help raise awareness of vascular Ehlers-Danlos Syndrome (vascular EDS).
***(𝗟ᴀ𝘀ᴛ ᴅᴀʏ ᴛᴏ 𝘀ᴇᴄᴜʀᴇ ᴀ 𝘀ᴇᴀᴛ ɪ𝘀 𝗪ᴇᴅɴᴇ𝘀ᴅᴀʏ, 𝗔ᴘʀɪʟ 𝟭𝟵ᴛʜ!!)***
𝗡𝗼 𝗪𝗮𝗹𝗸 𝗜𝗻'𝘀 ---𝗮𝘀 𝘄𝗲 𝗻𝗲𝗲𝗱 𝗮 𝗵𝗲𝗮𝗱𝗰𝗼𝘂𝗻𝘁 𝗳𝗼𝗿 𝘁𝗵𝗲 𝘃𝗲𝗻𝘂𝗲
On October 6, 2022 we celebrated the 3rd birthday of The VEDS Movement and the power of our community! Watch the replay here.
Roe Nania served as Chair of the 2022 Event
We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.