Scholarship Application Open Window
- Scholarship Application process will be open from August 1, 2024 to October 1, 2024. We will link the formal application on our website when the window opens.
Aortic Dissection Awareness Day--September 19, 2024
- Aortic Dissection Awareness Day is observed annually on September 19. It was created to raise awareness of a relatively rare condition that is difficult to diagnose and can be fatal when diagnosed too late in an emergency situation.
- Aortic dissection is a condition where the innermost layer of the aorta (the main and largest artery in the body) gets injured, which results in blood flowing between the layers of the aortic wall, forcing them apart. If not treated immediately, aortic dissection can quickly lead to death from aortic rupture or myocardial ischemia (insufficient blood flow to the heart muscle).
Fundraising Event Hosted by IHOP
- Event Date: Monday, September 16, 2024
- Time: 3pm to 10pm
- Location: 2951 Avenue U, Brooklyn, NY 11229
- 20% of sales, during that time that day, donated to BELOvEDS
- Not to be combined with IHOPPY Hour, Kids Eat Free, Pan Coins, Discount Coupons, special offers or on-line orders.
- Use Code 0916 at Check out for your order to qualify...Digital Copy of flyer accepted.
Marfan Foundation's Global Virtual Conference
- Mark your calendars for Marfan's Yearly Conference which will be held virtually this year. They will explore the power of connection, mental health challenges, the latest research, and much more through a series of engaging webinars and meetings. There's no cost for attendees, but you must register! Click the link below to register.
2024 NYC Walk for Victory
Saturday, June 1, 2024 11 am-2 p.m.
Hudson River Park- Clinton Cove
(Hudson River Greenway, New York, NY 10019
west side highway btwn 55th and 56th Streets)
Hosted by The Marfan Foundation, the Walk for Victory is a global walk program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers Danlos Syndrome (VEDS), and related conditions communities together. .
REDS4VEDS Day
Friday, May 17, 2024
REDS4VEDS Day is a global campaign that takes place on the third Friday of May each year to help raise awareness of vascular Ehlers-Danlos Syndrome (vascular EDS).
3rd Annual vEDS Comedy Fundraiser in Memory of Angelo Nania Jr.
Please Note: as of April 8th 2024, Our event is officially sold out!!! Incredible!!! We have the best supporters! While we cannot accommodate more seats, we would love for you to be able to still support our event or our scholarship fund. Please consider making a donation in lieu of missing our event this year. As always, Thank you!
Date: April 27, 2024
Time: 7 to 11 pm
Location: Archbishop John Hughes Council 481
1305 86th Street
Brooklyn, NY 11228
Downstairs room
Comedy Fundraiser Sponsorship Opportunity Available
Rare Disease Day
Thursday, February 29, 2024
Rare Disease Day is a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally! vEDS is a rare disease!