Marfan Foundation's 40th Conference & Health Fair
More info to come shortly
Application window opens August 1, 2025
More info to come shortly
September 2, 2025
iHop Dine in Fundraiser (3pm to 10pm)
2951 Avenue U, Brooklyn, NY 11229
More info to come shortly
Aortic Dissection Awareness Day--September 19, 2025
- Aortic Dissection Awareness Day is observed annually on September 19. It was created to raise awareness of a relatively rare condition that is difficult to diagnose and can be fatal when diagnosed too late in an emergency situation.
- Aortic dissection is a condition where the innermost layer of the aorta (the main and largest artery in the body) gets injured, which results in blood flowing between the layers of the aortic wall, forcing them apart. If not treated immediately, aortic dissection can quickly lead to death from aortic rupture or myocardial ischemia (insufficient blood flow to the heart muscle).
GivingTuesday
Rare Disease Day
Saturday, February 28, 2026
Rare Disease Day is a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally! vEDS is a rare disease!
5th Annual vEDS Fundraiser
5th Annual vEDS Fundraiser in
Memory of Angelo Nania Jr.
Date: Saturday, April 25, 2026
Time: 7pm to 11 pm
Location: TBA
stay tuned for more details in the coming weeks