GivingTuesday
Rare Disease Day
Saturday, February 28, 2026
Rare Disease Day is a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally! vEDS is a rare disease!
5th Annual vEDS Fundraiser
5th Annual vEDS Fundraiser in
Memory of Angelo Nania Jr.
Date: Saturday, April 25, 2026
Time: 7pm to 11 pm
Location:
Roma View Catering Hall
60-05 Cross Bay Blvd
Howard Beach, NY 11414
(Rhapsodie Room)
Sponsorship Opportunities
5th Annual vEDS Fundraiser in
Memory of Angelo Nania Jr.
Date: Saturday, April 25, 2026
Time: 7pm to 11 pm
Location:
Roma View Catering Hall
Final Cutoff for Sponsors will be March 31, 2026
REDS4VEDS Day
Friday, May 15, 2026
REDS4VEDS Day is a global campaign that takes place on the third Friday of May each year to help raise awareness of vascular Ehlers-Danlos Syndrome (vascular EDS).
Aortic Dissection Awareness Day--September 19, 2026
- Aortic Dissection Awareness Day is observed annually on September 19. It was created to raise awareness of a relatively rare condition that is difficult to diagnose and can be fatal when diagnosed too late in an emergency situation.
- Aortic dissection is a condition where the innermost layer of the aorta (the main and largest artery in the body) gets injured, which results in blood flowing between the layers of the aortic wall, forcing them apart. If not treated immediately, aortic dissection can quickly lead to death from aortic rupture or myocardial ischemia (insufficient blood flow to the heart muscle).