Shoe Drive
Ongoing through February 2026
Application window opens January 1, 2026 and Closes March 1, 2026
Rare Disease Day
Saturday, February 28, 2026
Rare Disease Day is a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally! vEDS is a rare disease!
5th Annual vEDS Fundraiser
5th Annual vEDS Fundraiser in
Memory of Angelo Nania Jr.
Date: Saturday, April 25, 2026
Time: 7pm to 11 pm
Location:
Roma View Catering Hall
60-05 Cross Bay Blvd
Howard Beach, NY 11414
(Rhapsodie Room)
Sponsorship Opportunities
5th Annual vEDS Fundraiser in
Memory of Angelo Nania Jr.
Date: Saturday, April 25, 2026
Time: 7pm to 11 pm
Location:
Roma View Catering Hall
Final Cutoff for Sponsors will be March 31, 2026
REDS4VEDS Day
Friday, May 15, 2026
REDS4VEDS Day is a global campaign that takes place on the third Friday of May each year to help raise awareness of vascular Ehlers-Danlos Syndrome (vascular EDS).
New York Walk for Victory
New York Walk for Victory
DATE: May 9, 2026
TIME: 10am-1pm
LOCATION: Cathedral of The Incarnation
50 Cathedral Ave, Garden City, NY 11530
Join us as we spread awareness and raise funds to support The Marfan Foundation's mission! Walk for Victory is a community-focused, family-friendly event with lunch, kids activities, and a short, non-competitive walk.
Get Ready for a Night of Glamour, Inspiration, and Impact!
26th Annual HeartWorks Gala
Tuesday, June 9th, 2026
Cipriani 42nd Street, New York City
On June 9, 2026, the Marfan Foundation welcomes guests to Cipriani 42nd Street for Heartworks NYC 2026, an extraordinary evening celebrating 45 years of The Marfan Foundation’s impact, progress, and hope.
This year’s gala, with returning Dinner Chairs Karen Murray and Sinclair Li, honors the Foundation’s legacy of advancing research, improving patient care, and supporting individuals and families affected by Marfan syndrome and related conditions—while looking ahead to the future we are building together.
We are proud to present the Inspiration of Excellence Award to Dr. Alan and Rebecca Braverman, recognizing their extraordinary leadership and dedication to the Marfan community. The Hero with Heart Awards will be presented to Jim Prutow and Roe Nania, honoring their generosity, advocacy, and unwavering commitment to our mission.
The evening will feature electrifying entertainment by Electric Avenue and an exciting live auction led by Harry Santa Olalla.
Heartworks NYC is a celebration of community, resilience, and the heart behind 45 years of lifesaving work—and the many milestones still to come.
Aortic Dissection Awareness Day--September 19, 2026
- Aortic Dissection Awareness Day is observed annually on September 19. It was created to raise awareness of a relatively rare condition that is difficult to diagnose and can be fatal when diagnosed too late in an emergency situation.
- Aortic dissection is a condition where the innermost layer of the aorta (the main and largest artery in the body) gets injured, which results in blood flowing between the layers of the aortic wall, forcing them apart. If not treated immediately, aortic dissection can quickly lead to death from aortic rupture or myocardial ischemia (insufficient blood flow to the heart muscle).