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    • Home
    • About Us
      • Our Board of Directors
      • Our Story
      • Our Mission
      • Our Committees
    • What is vEDS
    • Events
      • Upcoming Events
      • Past Events
      • Event Memories
      • Meet Our Sponsors
    • vEDS Scholarship
    • Donate
    • vEDS Resource Page
    • vEDS in TV Shows & Movies
    • Newsletter-News-Accolades
    • Contact Us
    • Merchandise
  • Home
  • About Us
    • Our Board of Directors
    • Our Story
    • Our Mission
    • Our Committees
  • What is vEDS
  • Events
    • Upcoming Events
    • Past Events
    • Event Memories
    • Meet Our Sponsors
  • vEDS Scholarship
  • Donate
  • vEDS Resource Page
  • vEDS in TV Shows & Movies
  • Newsletter-News-Accolades
  • Contact Us
  • Merchandise

Upcoming Events

Saturday June 7, 2025

 Noon-3:00P.M.
One Giralda Farms  

Madison, NJ

To Join our Team

Marfan Foundation's 40th Conference & Health Fair

More info to come shortly


Application window opens August 1, 2025

More info to come shortly


September 2, 2025


iHop Dine in Fundraiser (3pm to 10pm)

 2951 Avenue U, Brooklyn, NY 11229 


More info to come shortly


Aortic Dissection Awareness Day--September 19, 2025

  • Aortic Dissection Awareness Day is observed annually on September 19. It was created to raise awareness of a relatively rare condition that is difficult to diagnose and can be fatal when diagnosed too late in an emergency situation. 


  • Aortic dissection is a condition where the innermost layer of the aorta (the main and largest artery in the body) gets injured, which results in blood flowing between the layers of the aortic wall, forcing them apart. If not treated immediately, aortic dissection can quickly lead to death from aortic rupture or myocardial ischemia (insufficient blood flow to the heart muscle).

GivingTuesday

To Donate

2026 Events

Past Events
Donate
Merchandise

Rare Disease Day

 Saturday, February 28, 2026


Rare Disease Day is a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally!  vEDS is a rare disease!

For More information

5th Annual vEDS Fundraiser

5th Annual vEDS Fundraiser in

 Memory of Angelo Nania Jr.

Date:  Saturday, April 25, 2026

Time:  7pm to 11 pm

Location:  TBA


stay tuned for more details in the coming weeks



Copyright © 2023 BELOvEDS, A Nania Foundation Inc. - All Rights Reserved.


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