Scholarship Application Open Window
- Scholarship Application process will be open from January 1, 2025 to March 1, 2025. We will link the formal application on our website when the window opens.
NY Islanders vs San Jose Sharks
Saturday, January 18, 2025 at 7:30 pm
Come out to see the NY Islanders take on the San Jose Sharks at the UBS Arena. Each ticket purchased in our group helps raise money for BELOvEDS and the vEDS Community.
Rare Disease Day
Thursday, February 28, 2025
Rare Disease Day is a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally! vEDS is a rare disease!
4th Annual vEDS Fundraiser
4th Annual vEDS Comedy Fundraiser in
Memory of Angelo Nania Jr.
Date: Saturday, April 26, 2025
Time: 7pm to 11 pm
Location: Archbishop John Hughes Council 1305 86th Street, Brooklyn NY (Upstairs Room).
REDS4VEDS Day
Friday, May 16, 2025
REDS4VEDS Day is a global campaign that takes place on the third Friday of May each year to help raise awareness of vascular Ehlers-Danlos Syndrome (vascular EDS).
Aortic Dissection Awareness Day--September 19, 2025
- Aortic Dissection Awareness Day is observed annually on September 19. It was created to raise awareness of a relatively rare condition that is difficult to diagnose and can be fatal when diagnosed too late in an emergency situation.
- Aortic dissection is a condition where the innermost layer of the aorta (the main and largest artery in the body) gets injured, which results in blood flowing between the layers of the aortic wall, forcing them apart. If not treated immediately, aortic dissection can quickly lead to death from aortic rupture or myocardial ischemia (insufficient blood flow to the heart muscle).