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    • Home
    • About Us
      • Our Board of Directors
      • Our Story
      • Our Mission
      • Our Committees
    • What is vEDS
    • Events
      • Upcoming Events
      • Past Events
      • Event Memories
      • Meet Our Sponsors
    • vEDS Scholarship
    • Donate
    • vEDS Resource Page
    • vEDS in TV Shows & Movies
    • Newsletter-News-Accolades
    • Contact Us
    • Merchandise
  • Home
  • About Us
    • Our Board of Directors
    • Our Story
    • Our Mission
    • Our Committees
  • What is vEDS
  • Events
    • Upcoming Events
    • Past Events
    • Event Memories
    • Meet Our Sponsors
  • vEDS Scholarship
  • Donate
  • vEDS Resource Page
  • vEDS in TV Shows & Movies
  • Newsletter-News-Accolades
  • Contact Us
  • Merchandise

2024 Past Events

GivingTuesday

To Donate

Scholarship Application Open Window

  •  Scholarship Application process will be open  from  August 1, 2024 to  October 1, 2024.  We will link the formal application on our website when the window opens. 

More Infomation

Aortic Dissection Awareness Day--September 19, 2024

  • Aortic Dissection Awareness Day is observed annually on September 19. It was created to raise awareness of a relatively rare condition that is difficult to diagnose and can be fatal when diagnosed too late in an emergency situation. 


  • Aortic dissection is a condition where the innermost layer of the aorta (the main and largest artery in the body) gets injured, which results in blood flowing between the layers of the aortic wall, forcing them apart. If not treated immediately, aortic dissection can quickly lead to death from aortic rupture or myocardial ischemia (insufficient blood flow to the heart muscle).

Fundraising Event Hosted by IHOP

  • Event Date: Monday, September 16, 2024
  • Time:  3pm to 10pm
  • Location:  2951 Avenue U, Brooklyn, NY 11229
  • 20% of sales, during that time that day, donated to BELOvEDS


  • Not to be combined with IHOPPY Hour, Kids Eat Free, Pan Coins, Discount Coupons, special offers or on-line orders.


  • Use Code 0916 at Check out for your order to qualify...Digital Copy of flyer accepted.

Marfan Foundation's Global Virtual Conference

  • Mark  your calendars for Marfan's Yearly Conference which will be held virtually this year.   They will explore the power of connection, mental health challenges, the latest research, and much more through a series of engaging webinars and meetings. There's no cost for attendees, but you must register! Click the link below to register.

To Register or For More Infomation

2024 NYC Walk for Victory

 Saturday, June 1, 2024 11 am-2 p.m.

 Hudson River Park- Clinton Cove

 (Hudson River Greenway, New York, NY 10019

west side highway btwn 55th and 56th Streets) 


 Hosted by The Marfan Foundation, the Walk for Victory is a global walk  program that brings the Marfan, Loeys-Dietz (LDS), Vascular Ehlers  Danlos Syndrome (VEDS), and related conditions communities together.  . 

For More information or to join our team

REDS4VEDS Day

Friday, May 17, 2024

 REDS4VEDS Day is a global campaign that takes place on the third Friday of May each year to help raise awareness of vascular Ehlers-Danlos Syndrome (vascular EDS).

More Infomation

3rd Annual vEDS Comedy Fundraiser in Memory of Angelo Nania Jr.

Please Note:  as of April 8th 2024, Our event is officially sold out!!!  Incredible!!!  We have the best  supporters!    While we cannot accommodate more seats, we would love for  you to be able to still support our event or our scholarship fund.    Please consider making a donation in lieu of missing our event this  year. As always, Thank you! 


Date:  April 27, 2024

Time:  7 to 11 pm

Location:  Archbishop John Hughes Council 481
1305 86th Street

Brooklyn, NY  11228
Downstairs room

Click to Donate to event

Comedy Fundraiser Sponsorship Opportunity Available

Meet our Sponsors

Rare Disease Day

 Thursday, February 29, 2024


Rare Disease Day is a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally!  vEDS is a rare disease!

For More information
Upcoming Events
Past Events
Donate

Copyright © 2023 BELOvEDS, A Nania Foundation Inc. - All Rights Reserved.


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