October 14, 2023
First Annual vEDS Scholarship Fundraiser
All proceeds from this event will go toward a Scholarship Fund for young adults whose parents or legal guardian have a confirmed diagnosis of vascular Elhers-Danlos Syndrome (vEDS)
(See our vEDS Scholarship Page for more information)
Aortic Dissection Awareness Day--September 19, 2023
- Aortic Dissection Awareness Day is observed annually on September 19. It was created to raise awareness of a relatively rare condition that is difficult to diagnose and can be fatal when diagnosed too late in an emergency situation.
- Aortic dissection is a condition where the innermost layer of the aorta (the main and largest artery in the body) gets injured, which results in blood flowing between the layers of the aortic wall, forcing them apart. If not treated immediately, aortic dissection can quickly lead to death from aortic rupture or myocardial ischemia (insufficient blood flow to the heart muscle).
REDS4VEDS Day
Friday, May 19, 2023
REDS4VEDS Day is a global campaign that takes place on the third Friday of May each year to help raise awareness of vascular Ehlers-Danlos Syndrome (vascular EDS).
2nd Annual Night of Comedy in Memory of Angelo Nania Jr.
- Date: Saturday, April 29, 2023
- Time: 7 pm to 11 pm
- Where: St. Mary's/Maris Stella Knights of Columbus Council
- 75 Hempstead Avenue, Lynbrook NY 11563
- Cost: $75/person includes Hot Food Buffet, Premium Open Bar and A Comedy Show.
***(𝗟ᴀ𝘀ᴛ ᴅᴀʏ ᴛᴏ 𝘀ᴇᴄᴜʀᴇ ᴀ 𝘀ᴇᴀᴛ ɪ𝘀 𝗪ᴇᴅɴᴇ𝘀ᴅᴀʏ, 𝗔ᴘʀɪʟ 𝟭𝟵ᴛʜ!!)***
𝗡𝗼 𝗪𝗮𝗹𝗸 𝗜𝗻'𝘀 ---𝗮𝘀 𝘄𝗲 𝗻𝗲𝗲𝗱 𝗮 𝗵𝗲𝗮𝗱𝗰𝗼𝘂𝗻𝘁 𝗳𝗼𝗿 𝘁𝗵𝗲 𝘃𝗲𝗻𝘂𝗲